We face people every daybut what if a rare congenital malady deprives a child of the power to smile or frown, to have any facial expression whatever? Dr Cole is an expert on this condition, and, along with Henrietta Spalding, who grew up with Möbius Syndrome herself, he presents the life stories of people with this neurological conditionand the varied ways in which they cope and adapt. Cole writes vividly, but with delicacy and sympathy, combining deeply personal portraits with pioneering scientific insight.

Oliver Sacks

Möbius Syndrome is a rare condition that deprives its victims of something we all take for granted: the ability to express our emotions through facial expression. It is important to know more about this condition for human as well as scientific reasons. Jonathan Cole, who is the medical authority on Möbius, and Henrietta Spalding, who knows Möbius first hand, provide the best guide yet to the problem in a direct and readable text.

Antonio Damasio

We are defined by our faces. They give identity but, equally importantly, reveal our moods and emotions through facial expression. So what happens when the face cannot move? This book is about people who live with Möbius Syndrome, which has as its main feature an absence of movement of the muscles of facial expression from birth. People with Möbius cannot smile, frown, or look surprised or sad. Talking and eating are problematic, since their lips do not move. Even looking around is also difficult since the eyes cannot move either. The book is unique in giving those with Möbius a voice, allowing children and adults with the condition to explain what it is like. These fascinating biographies reveal much about the relations between face and facial expression, and emotional expression and emotional experience which we normally take for granted. The narratives also show the creative ways in which those with Möbius construct their lives and how they come to terms with and express their identities with, and yet, beyond their faces. Some with Möbius have been thought to have learning difficulties and autism, since an impassive immobile face has been assumed to reflect inner cognitive problems. This book criticises such work and asks people to look not only at the face but beyond it to see the person. Throughout the book, several themes emerge, of which perhaps the most surprising is the reduced emotional experience those with Möbius can have as children and young adults and the journeys they go on as they realise this and then assimilate emotion from the outside in. The result of a 4 year collaboration between a clinician/neuroscientist and a teacher/lobbyist who lives with Möbius, 'The Invisible Smile' provides an authentic, personal, and moving account of this disorder.
Les mer
We are defined by our faces. They give identity but, equally importantly, reveal our moods and emotions through facial expression. So what happens when the face cannot move? This book is about people who live with Möbius Syndrome, which has as its main feature an absence of movement of the muscles of facial expression from birth.
Les mer
1. Introduction ; 2. Somebody home ; 3. Balancing acts ; 4. Cartesian children ; 5. Part of me ; 6. The spectator ; 7. Elastic between us ; 8. Hear my smile ; 9. 'Doomed to express' ; 10. Changing of the rules ; 11. Every second of the day ; 12. Not about anything ; 13. Rusty old car ; 14. The last why
Les mer
Highly commended in the Popular Medicine Category of the BMA Book Awards 2009
Provides first hand accounts of living without facial expression, allowing a completely new way of looking at ourselves Enables us to understand the crucial role of the face and facial expression in our social lives, identity and selfhood Underpinned by medical and neuroscience expertise, resulting in a scientifically credible volume The result of a 4 year collaboration between a clinician/neuroscientist and a teacher/lobbyist who lives with Moebius, providing an authenticity and immediacy often missing from such accounts
Les mer
Jonathan Cole (MA, MSc, DM, FRCP) was educated at Brasenose College, Oxford and The Middlesex Hospital and while there did his medical elective in New York with Oliver Sacks. He completed his training in London before returning to Oxford and then Southampton to do research. He now is a consultant in clinical neurophysiology and an academic, with over 70 papers and 200 publications in the control of movement without sensory feedback, affective or emotional touch and in chronic pain. He also believes that one must understand chronic impairment from a subjective, first person account and has published a series of books, on sensory loss, facial visible difference and spinal cord injury, exploring the first person experience of these conditions. He also collaborates with philosophers and choreographers on the consequences of his work for notions of embodiment and affective movement/position sense. Henrietta Spalding (BA Hons) read Russian and American Studies at Keele University graduating in 1992. She spent 12 years working in education both in the UK and abroad. She has taught a wide variety of nationalities and ages of students from 5 year old upwards and including business teaching and Higher Education. Whilst living abroad she helped set up a support group for individuals and their families with Moebius Syndrome. On returning to the UK, five years ago, she became involved in the national charity, Changing Faces, which supports and represents individuals with disfigurements. She now heads their Professionals' Programme working to ensure every health clinic, school and workplace in the country is informed, skilled and able to address the psycho-social needs of people with disfigurements. She also lives with Moebius Syndrome herself.
Les mer
Provides first hand accounts of living without facial expression, allowing a completely new way of looking at ourselves Enables us to understand the crucial role of the face and facial expression in our social lives, identity and selfhood Underpinned by medical and neuroscience expertise, resulting in a scientifically credible volume The result of a 4 year collaboration between a clinician/neuroscientist and a teacher/lobbyist who lives with Moebius, providing an authenticity and immediacy often missing from such accounts
Les mer

Produktdetaljer

ISBN
9780198566397
Publisert
2008
Utgiver
Oxford University Press
Vekt
546 gr
Høyde
241 mm
Bredde
161 mm
Dybde
24 mm
Aldersnivå
G, 01
Språk
Product language
Engelsk
Format
Product format
Innbundet
Antall sider
247

Biografisk notat

Jonathan Cole (MA, MSc, DM, FRCP) was educated at Brasenose College, Oxford and The Middlesex Hospital and while there did his medical elective in New York with Oliver Sacks. He completed his training in London before returning to Oxford and then Southampton to do research. He now is a consultant in clinical neurophysiology and an academic, with over 70 papers and 200 publications in the control of movement without sensory feedback, affective or emotional touch and in chronic pain. He also believes that one must understand chronic impairment from a subjective, first person account and has published a series of books, on sensory loss, facial visible difference and spinal cord injury, exploring the first person experience of these conditions. He also collaborates with philosophers and choreographers on the consequences of his work for notions of embodiment and affective movement/position sense. Henrietta Spalding (BA Hons) read Russian and American Studies at Keele University graduating in 1992. She spent 12 years working in education both in the UK and abroad. She has taught a wide variety of nationalities and ages of students from 5 year old upwards and including business teaching and Higher Education. Whilst living abroad she helped set up a support group for individuals and their families with Moebius Syndrome. On returning to the UK, five years ago, she became involved in the national charity, Changing Faces, which supports and represents individuals with disfigurements. She now heads their Professionals' Programme working to ensure every health clinic, school and workplace in the country is informed, skilled and able to address the psycho-social needs of people with disfigurements. She also lives with Moebius Syndrome herself.