For the average person, genetic testing has two very different faces.
The rise of genetic testing is often promoted as the democratization
of genetics by enabling individuals to gain insights into their unique
makeup. At the same time, many have raised concerns that genetic
testing and sequencing reveal intensely personal and private
information. As these technologies become increasingly available as
consumer products, the ethical, legal, and regulatory challenges
presented by genomics are ever looming. Assembling multidisciplinary
experts, this volume evaluates the different models used to deliver
consumer genetics and considers a number of key questions: How should
we mediate privacy and other ethical concerns around genetic
databases? Does aggregating data from genetic testing turn people into
products by commercializing their data? How might this data reduce or
exacerbate existing healthcare disparities? Contributing authors also
provide guidance on protecting consumer privacy and safety while
promoting innovation.
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Ethical and Legal Considerations
Produktdetaljer
ISBN
9781108858014
Publisert
2021
Utgiver
Cambridge University Press
Språk
Product language
Engelsk
Format
Product format
Digital bok
Forfatter